Faces of Lupus

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Faces of Lupus

Uploaded by: myalr
Video Description:
The Alliance for Lupus Research presents the Faces of Lupus. A series of 6 stories told by people directly affected by this debilitating disease.
Starring: Michael Douglas, ALR Founder and Chairman Robert Wood Johnson IV, ALR Scientific Advisory Board Chair Joseph E. Craft, MD, and ALR volunteers Eddie and Kyle Beltran, Tracey Boston, Gena Carter, MD, Annie Corley-Hand, Laura, Erika, and Tyler Poquette, and Dorian Mims.

Tags for this video: announcements debilitatind disease Douglas effects grassroots lupus Michael nonprofit outreach public service side

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my mother has lupus ... ( 4 months ago by brokenXXXglass)

my mother has lupus =(

i got diagnosed ... ( 3 months ago by kmrx09)

i got diagnosed with lupus at 14. i knew nothing about it and i mean nothing i didn't even know it existed . i got caught right in the nick of time. if i didn't get treatments when i did i would be on dialysis right now. thank god for doctors who know what there doing =] god bless everyone. i am now 17 and doing pretty good. still on lots of meds & after getting 6 months of chemo i'm living. god is my healer let him be yours too.

i've got SLE ... ( 3 months ago by ch1Co4019rep)

i've got SLE nurphritis or somthing it's too do with kidney's probably not as worse s some others but it's still annoying... makes me unique in a way i guess being 16 i can't do somethings that my friends or family can do but i still manage just have hope and you'll push through...

this is a great ... ( 3 months ago by nayz123)

this is a great video
i was diagnosed with lupus in 1997 aged 19yrs
i was 7-8 months preg with my 1st child
ive had 3 clots
1 in my right leg and 2 in my left lung
at the moment im on warfrin to thin my flood and i get the off flair once every yr in my back
the doctors are saying now i have suspected tissue damage due to lupus

I have been ... ( 2 months ago by SxEshawn)

I have been diagnosed with Lupus since December...the pain is terrible and still wont subside, it is a ravaging disease which makes my life pretty chaotic

oh yeah prednisone ... ( 2 months ago by SxEshawn)

oh yeah prednisone blows...everyone fight the good fight

hi my name is nina ... ( 2 months ago by nina31789)

hi my name is nina mcknight ,, my mom is 36 years old &&
she's been diagnosed with lupus &&& she's been strugglin for years she was born 1971 and she had open heart surgey and died june 16 2008 i love u mom R.I.P :]

The Alliance for ... ( 2 months ago by domichica)

The Alliance for lupus research walk in NYC is being held October 11!! Please walk to raise awarness and raise money to find a cure.
I HAVE LUPUS AS WELL!

This is such a ... ( 2 months ago by popithasalor)

This is such a horrible disease. I just recently lost my sister to this disabilatating disease. I hope one day there will be a cure so families won't have to lose a loved one to it anymore. I pray everyday for a cure.

My sister sarah ... ( 2 months ago by brimchanel)

My sister sarah wade jones passed away from lupus may 12 2008.She tried numerous expieramental drugs,she said if trying that could help 1 person it would be worth it.She got through everyday with a smile thanks too her relationship with jesus christ,she gave me inspiration just you ladies and men do.I pray that they find a cure and for gods grace for everyone of you.

sarah wade jones ... ( 2 months ago by brimchanel)

sarah wade jones had lupus

I've got lupus too! ... ( 2 months ago by kathstew48)

I've got lupus too!. I'm 13 years old, and only have had it for a couple months. Tomorrow, I'm going to a lupus walk! I'm on prednisone, and have the puffy face to prove it! Lets find a cure for lupus!

I was diagnosed 25 ... ( 2 months ago by terrig52)

I was diagnosed 25 yrs. ago. I had many odd illness that couldn't be diagnosed when I was small. Now it all makes sense. I was so desperately sick after giving birth to my children and still they didn't know what was wrong. Stress is what through me into a lupus flair when I was finally diagnosed. I was in bed for months. Later, I had a job then which nearly killed me and now it's very dangerous for me to over do. I have lung disease, 2 lung surgeries, heart problems all caused from lupus.

i have lupus for 5 ... ( 1 month ago by 95678521)

i have lupus for 5 years and its a really horrible disease

i hav lupus 2...im ... ( 1 month ago by mhinenidhiane)

i hav lupus 2...im nikky,but i believed im going to be cured...its very hard to deal with the symptoms of lupus...now im 16, i was 13 when i was diagnosed...lets help people with lupus...

I was diagnosed ... ( 1 month ago by mckinneymisses78)

I was diagnosed with Lupus in 1999 at the age of 20, and I don't have anyone to talk to about it, well no one that understands what I go through on a daily basis. The video and even some of the comments bring me to tears because I feel all of your pain. It's scary not knowing what the future holds.

Trying to actually ... ( 1 month ago by kakera)

Trying to actually get a diagnosis is the most difficult thing. people don't understand. Makes me want to give up. I am so tired of this...

all i can hope is ... ( 1 month ago by darryl349)

all i can hope is that your doing well :) and i think your a hero for holding out this long i would be glad to have a lupus walk or day named after you :)

all of you ppl are ... ( 1 month ago by darryl349)

all of you ppl are brave and good at heart :) take it strong and never give up. i feel for all of you

My Mom was ... ( 3 weeks ago by heroesfann)

My Mom was diagnosed with lupus at age 11. She passed away 10 minutes after i was born. they couldn't give her any treatment. it was rare back then.

This video has been ... ( 2 weeks ago by kezzie74)

This video has been extremely helpful to me in so many ways,just seeing the faces of other people with lupus has atleast helped me release there is other sufferers out there!I had many ailments over the years that were misdiagnosed but only 6 months ago was i properly diagnosed with this lonely and frusterating illness.Thankfully i have 4 children but my husband doesn't seem to be too understanding as i seem to be the picture of health!Oh the joys of lupus .

I have a friend ... ( 2 weeks ago by Panovich04)

I have a friend right now who is on life support because of lupus, I'm praying 4 him. Let us find a cure

I was diagnose last ... ( 1 week ago by smoocherooch)

I was diagnose last year in September 08

I was diagnosed ... ( 1 week ago by alygirl06)

I was diagnosed with lupus one year ago, and I suffer occasionally with sore ankles and hands.... Prednisone was a miracle - but I was on it for nearly a year. I've been on Plaquenil for more than 6 months and my pain occurs daily now. I've also now been diagnosed with fibromyalgia. That pain sucks! Although this is all a burden and interferes with my daily life - I thought this video was very dooming and scary..... Almost makes me worry even more!

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Faces of Lupus