S.L.E. Lupus Foundation: Life Without Lupus

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S.L.E. Lupus Foundation: Life Without Lupus

Uploaded by: LupusNY
Video Description:
S.L.E. Lupus Foundation, 2007
For nearly 40 years, the S.L.E. Lupus Foundation has helped people with lupus
and their families, funded lupus research,
and raised awareness of this chronic illness.

Tags for this video: announcements autoimmune erythematosus health healthcare lupus nephritis nonprofit public service sle systemic women's

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I think this video ... ( 11 months ago by lupusurvivor29)

I think this video is Great. For people who dont know about lupus or has a family member that is sick and dont know what it is. This video is what it's like for people (such as I) who have lupus live like each day.

Thank you for ... ( 11 months ago by kiridoku)

Thank you for posting this!
Bill
Schenectady, NY

hi im marife from ... ( 11 months ago by khalel214)

hi im marife from phil. i have lupus can you help me to know more information about this?

Hi My name is Larry ... ( 11 months ago by airman151)

Hi My name is Larry, I was diagnose with lupus in Aug. 1999. I was 35 years old, it's been rough on my entire family. Thank you for posting this video people need to know about this terrible disease.

hi my name is mia.. ... ( 11 months ago by portuna81)

hi my name is mia...this video is awesome. i have lupus myself. i was diagnose 6 months ago. it changed my life forever. thank you for posting this vidoe.

Hello, My name is ... ( 11 months ago by twscle)

Hello, My name is Cynthia I was diagnosed with Lupus in August 2005. It was very hard for me to cope with this disease because I reaaly have no family, It's just my daughter and myself. NOW I have educated myself and have my sickness under control. Anyone who has this disease reach out to someone don't suffer in silence.

This is a great, ... ( 10 months ago by darylhorner)

This is a great, informative video...But as a man with Lupus, why does no one speak for me?

mabey you need to ... ( 10 months ago by luralisious)

mabey you need to be the one to speak for the men with lupus.
i think you should be the first.

This video is ... ( 10 months ago by mizmitchell)

This video is amazing to watch, to listen to, to feel and to learn from. After surviving (3 years) SLE with good docs, the right meds and excellent friends, I want to reach out to love my sisters and brothers with Lupus. I want to commend the film makers of this; I only wish it could be an advertisement for public awareness. So true; so well done. God bless you all!

I was diagnosed ... ( 8 months ago by ilovenoy)

I was diagnosed with SLE 3 years ago. Everyday, life is a struggle.God bless to all the people with Lupus and their families.

I've lived with ... ( 8 months ago by 181989181989)

I've lived with lupus for 15 years, and didn't find out until recently exactly what it was. I've had to have chemo.. it's effected every system of my body. Including my kidneys and central nervous system. I'm glad there is actually some information out there about lupus, because it seems some people don't know what it is.

I know what you ... ( 8 months ago by ajsmommy)

I know what you mean. I am about to have people stand up and listen to all us "LUPIES" because it is TIME for a CURE! I have severe SLE..for the sake of our families we need a cure!

I felt so validated ... ( 8 months ago by MommaAng)

I felt so validated when the young woman talked about her doctor telling her to seek psychological help, that it was all in her head. That was the worst part for me - as soon as a doctor reached the limits of their knowledge, I was labeled and dismissed. I actually started doubting myself at one point. It sucks to have lupus, but it's great to finally have a diagnosis. Bottom line: DON'T GIVE UP. No one knows your body better than you.

Thank you for this ... ( 6 months ago by rogerscoco)

Thank you for this video. I have had Lupus for over 30 years and can relate to all that is being said. I spent so much time in hospital that I eventually became a nurse! I never found a partner - nobody wants to live through this so I've always been alone but happy as I live with my dogs and cat who don't judge me. One of my previous dogs, Sooty had Lupus - yes, dogs get it too, although it is extremely rare. I think she was sent to me because someone knew I understood her pain. She was my life.

thank you so much ... ( 6 months ago by MASIALEE)

thank you so much for posting this video ..... im really greatful and happy that... you guys all of you have the courage to speak out i know it must be very hard and painful too live with this terriable diesease... not only live with it .... but too deal with judgemental people .... please have faith in god and i also wanted to share a health supplment on the market called goji juice it aids in overall health and wellbeing

Awesome video. I ... ( 5 months ago by munkysrus711)

Awesome video. I was diagnosed with Lupus in 92. Sept/07 I had my first stroke due to Lupus. I have lost some use of my left side, and it gets me very depressed at times. I do thank god that I have regained as much as I have. I believe that my husband has alot to do with my recovery and of course my will. I am not ready for Lupus to take over completely!
~Rose , Chesapeake, VA

omg! i loved this ... ( 4 months ago by chabacana05)

omg! i loved this video!, i was diagnosed w/Lupus when i was 12! and it was really hard! !! i've been sick of my liver, heart and kidneys! but hey im still here! and im also so happy that there's losts of persons with similar experiences!... peace!

This video is ... ( 1 week ago by jumpygirl3)

This video is awesome--great job... I have Lupus... I was diagnosed in my mid-20's after being "sick" and sore off and on for years!
It is amazing how each person experiences it differently but the devastation to the body is equal.

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S.L.E. Lupus Foundation: Life Without Lupus